March 15 - Almost 1/2 Way Update
13 radiation treatments down, 15 to go! Almost halfway there! 💪🏻
Hudson had a great week in St. Louis with Matt. They were able to enjoy the nice weather with several walks at Lafayette Park. He’s still tolerating the sedation really well. The skin around his incision is pink but doesn’t seem to bother him too much. All in all, it’s going well!
Hudson and Matt met with Hudson’s primary oncology team this week, and his labs were all good. It’s crazy that we’re starting to think/talk about the next steps - life after treatment. Not long after he finishes his radiation, he’ll reach the 100 days post transplant mark. As long as his ANC is still above 500 at that time, he’ll be able to rejoin normal life, like going to daycare, church, and other activities with lots of people around. He’ll have another MRI of his brain and spine (and several other post transplant tests) on May 22. If his scan remains clear that day, we’ll be able to schedule surgery to have his central line removed. Then he’ll be on surveillance, with MRIs every 3 months to start. We’ve been told that if he can make it five years without relapse, the chances of it coming back are incredibly slim.
It feels kind of strange to be thinking about all of this - the end of treatment and what’s next. We’ve been operating in a “one day at a time” mind set for such a long time now. In a way, though, I think that might be our new norm. Every single day we have together is a gift, and tomorrow isn’t promised - I dont think we’ve ever been more aware of this. And although we’re going to have a “cancer cloud” looming over us as we live scan to scan, I pray that we’ll just stick with “one day at a time” - that we’ll have more days of living with hope and gratitude than days of living in fear.
The girls and I were so happy to see Matt and Hudson on Friday, and it was great to spend the day together today. We had no plans and no where to be - so good! Hudson and I will head to STL tomorrow evening for another week of radiation. Thank you all for praying and caring for our little guy!
Jesus, we trust in you. đź’›
